Rooted in Heleen Petri Eising’s PhD research (“Towards tailoring care in the gynaecology for women with bleeding disorders”), the patient interviews, and the collaboration with Junction, this website brings science and stories together. By translating lived experiences of bleeding disorders into art, it gives women a voice and offers professionals a renewed, human perspective on healthcare.
The website features stories from women with a hereditary bleeding disorder, aimed at sharing experiences and improving care, with involvement from patients, scientists, and (future) healthcare professionals. The stories on this site were collected in a scientific research project after women responded to a call on LinkedIn. The participants all have different bleeding disorders, varying in severity and symptoms. The stories presented here are summaries of the original accounts. All participants have given permission for their stories to be shared anonymously and used for scientific research.
Science and art are a powerful combination for expanding perspectives in healthcare. Non profit organisation Junction Care has gathered personal stories from individuals across Europe living with a hereditary bleeding disorder. These narratives give patients a voice, aim to inspire healthcare professionals to rethink how they engage with patients and serve as a source of knowledge for care, education and research. This project reflects how art and science together can bring a fresh perspective to women’s healthcare.
Junction Care as an organisation explores how imagination and dialogue can drive improvements in healthcare through workshops, talks, conversations, scientific research and tools.The website got a Honorable Mention on Awwwards.
